Mike's Medical Memo

All is well...

2010-03-11T10:35:00.001-05:00

"And moreover, I would desire that ye should consider on the blessed and happy state of those that keep the commandments of God. For behold, they are blessed in all things, both temporal and spiritual; and if they hold out faithful to the end they are received into heaven, that thereby they may dwell with God in a state of never-ending happiness. O remember, remember that these things are true, for the Lord God hath spoken it." Mosiah 2:41

I know Mike is in that blessed and happy state... Today marks 5 weeks since Mike's passing. It seems like it has been a life time already. My children and I are walking along the shore, waves of grief lapping around our ankles... Occasionally a huge wave comes along and nearly knocks us over...We dig our feet into the sand and steady ourselves. We try not to fall. We continue to walk forward with faith. We hope that soon, the little waves of grief will be the only ones we feel.

Our love for Mike has deepened. We have heard so many accounts of his life touching others. Many of the stories we are hearing for the first time. We are so very, very grateful for the many lives that have touched ours during this long journey. We have developed deeper appreciation for those who have supported us. We have made new friends. We have an amazing appreciation for those who cared for Mike and for each of us.

Mikes funeral and memorial services were fitting and deserving for such an amazing man. This leg of our journey has come to a close. We have begun a new journey now. We will continue to have meaning and purpose in our lives as we cherish the extraordinary memories we have of Mike, husband, father, son, and friend.

We find comfort in this verse:
"Death is nothing at all. I have only slipped away to the next room. I am I and you are you. Whatever we were to each other, that we still are. Call me by my familiar name, speak to me in the easy way which you always used. Put no difference in your tone, wear no forced air of solemnity or sorrow. Laugh as we always laughed at the little jokes we enjoyed together. Play, smile, think of me, pray for me. Let my name be ever the household word that it always was, let it be spoken without effort, without the trace of a shadow on it. Life means all that it ever meant. It is the same as it ever was; there is unbroken continuity. Why should I be out of mind because I am out of sight: I am waiting for you, for an interval, somewhere very near, just around the corner. 'All is well." Canon Henry Scott-Holland

The New Beginning of the Journey

2010-02-13T10:09:00.002-05:00

The journey of Mike's disease lasted just shy of 9 months. Mike was so courageous throughout the fight. He kept trying to get better...and get better he did. It has been an amazing time full of faith, love, laughter, pain, grief and support. I hope we have been gracious enough to let everyone who helped us know how deeply grateful we are for your time, talents and service. I have renewed friendships, deepened old friendships and gained such respect and appreciation for so many. Each time we were in need, whether it be emotionally, spiritually or physically, our Father in Heaven sent angels to our home. You, my friends, will receive great blessings because of your love and service.

On Wednesday we had an incredible service for Mike... Our immediate families attended. Each was able to express feelings from deep within their hearts. It was joyous, private and sacred. I know Mike is pleased.

Today we will celebrate his life with family, church and community. Mike will be given his due honor and respect. He deserves that as well.

Our hearts are full. We will continue to love, respect and honor Mike as our husband, father, son, brother and friend. We know he is "waiting for us, for an interval, somewhere very near, just around the corner." All is well...

Services for Mike

2010-02-06T10:43:00.002-05:00

We will have a private funeral and burial for Mike on Wednesday morning Feb. 10. There will be a Memorial service on Saturday Feb. 13 at 1:00 p.m. at our church, The Church of Jesus Christ of Latter Day Saints. Our family will be be pleased to meet and talk with everyone after the service. We hope you will all plan to attend...

Thanks to everyone who has helped us through this time. We are filled with humility when we consider your kindness.

Mike is the love of my life...He will be forever...

Thank you

2010-02-04T17:17:00.002-05:00

Today the world lost an amazing man. He left this world 9 months after our journey with cancer began. It took him 9 months to get here and 9 months to leave. We thank you for your continued support. All of your prayers over the last day have been answered. Dad is back to work again. What a miracle. Thank you for participating in this miracle with us.

Lots of love,
The Ellis Family

2010-02-04T11:15:00.003-05:00

We've been asked over and over again over the last little while what people can do to help.

Physically and emotionally we are doing fine. We have wonderful friends who have given us and dad the love and care that we need over the last few months and continue to come and care for us during this final stretch. We feel the love and support of each of you as these amazing people do and say just the right things to bring us all comfort. We have been the recipients of some amazing meals this week and thank you for the love and care that you put into providing these for us. We have gained strength from a loving Heavenly Father who has brought us peace and calm during a time when we might be finding difficulty. We are being taken care of just the way we need to be, and we thank you for that. Your prayers are being answered in our peace.

Last evening we had a good discussion with a dear friend. He mentioned how nice it would be to start writing down some memories of dad. This is something that you can help us with. We would love for as many of you as are willing to write down some of the wonderful memories that you have of dad. Your words will provide comfort for us for years to come and a way for his grand kids and great grand kids to get to know him from a different perspective. Mail them to us, email them to us, leave messages on the blog, or just keep them until you see us. We know how much you have meant to dad and would like to remember dad in this way.

Thank you,
Hannah

2010-02-03T14:31:00.003-05:00

The day has been so very difficult for Mike. He is experiencing pain again today. We are trying to relieve the pain...It gets ahead of us so quickly. Please pray that Mike can be released from this condition soon. His suffering is almost more than we can stand. He has such a strong will...We have sat in his room today, comforted him and listened to music. The music brings peace to our souls. We are so anxious for the miracle of Mike moving into the next life to occur. We know there he can work and serve and join those who are looking forward to seeing him again. He is ready to start running again...

Snowballs

2010-02-02T09:40:00.002-05:00

Mike is resting comfortably...We seem to have his pain under control. It is wonderful having Hannah here. Shared responsibility is always easier. Mike's brother has been visiting from out of town also. Mike's mind is so much clearer when he is awake. He still has a great sense of humor. He is aware that a friend brought some hostess "snowballs" to our house. I have a hard time letting him eat them, especially in bed. (I am not thinking they are the best nutritional choice) I don't like him to sleep with pink coconut crumbs. Yesterday he said to his brother, "do you think there is a chance in h-e-l-l that Nancy would let me have a snowball?" My reply..."not a snowball's chance!" He ate the snowball, crumbs and all.

2010-01-30T17:36:00.002-05:00

Our day has been very different and difficult. Mike woke up with an excrutiating headache. I called the hospice nurse and it was decided he needed to start taking a more effective pain medication. He is finally resting after many hours of pain. It is so difficult to watch him.

Hannah and I sat with Mike in his room and listened to the hymns...How soothing and comforting to listen to those sweet words.

Precious Savior, Dear Redeemer, Thou wilt bind the broken heart.
Let not sorrow overwhelm us; Dry the bitter tears that start.
Curb the winds and calm the billows; Bid the angry tempest cease.
Precious Savior, dear Redeemer, Grant us everlasting peace.

It is wonderful having our family here at this sacred time. We feel your love for us. Thank you for your continued prayers in our behalf. At this point we need this special time to ourselves. I will write on the blog as I can.

2010-01-26T09:07:00.002-05:00

Mike slept most of yesterday. This morning he is awake, alert and a bit more talkative. We are both calm and peaceful. I feel a tremendous load taken off my shoulders with the help of the hospice team. They are truly amazing. I think Mike and I both feel safer now. Thanks to all of you for your delightful comments on the previous post. I have read each of them to Mike. I told him I was so grateful that he has been so nice to people throughout his life so we could have some friends! This would be a lonely time without all of you...

Changes

2010-01-23T09:25:00.002-05:00

The past two weeks have been very challenging for us. Mike's condition has worsened. Our family made the decision to stop the current treatment. It is time for us to devote all of our energy to making Mike comfortable. We have "refocused our hope" as the nurse told me yesterday. Mike will continue to rest at home. We feel calm and peaceful with our decision. Thanks to all who are continuing to pray in our behalf.

A Good Day

2010-01-19T11:59:00.005-05:00

Mike responded to the new pain treatment very well. For the first time in many weeks, he said the headache was MUCH better!!!! We were happy that his blood tests were good and he is healthy for another round of chemo.

We enjoyed a wonderful meal last evening which was prepared by Rudy's "foster mother." It was so good to talk to her about Rudy and know he is extremely happy. (Maybe too happy :) Mike and I have listened endlessly to music that was sent from dear friends who are far, far away. They are the musicians on the CD and hearing their music helps us feel their love for us. We continue to have special angels spend the night with us and give us lots of TLC.

Today is indeed a good day...

This was sent to me by a friend..."Throughout scripture we encounter the need for us to remember that the Lord has His own timetable for unfolding things; it will not always accord with our schedules or our wants. When, in our extremities, we urgently call for a divine response, there may be instead a divine delay. This is not because God, at the moment, is inattentive or loves us less than perfectly. Rather, it is because we are being asked to endure more for the welfare of our souls. The blessed meek understand that God loves them even when they may not be able to explain the meaning of what is happening to them or around them."

MLK day

2010-01-18T23:25:00.003-05:00

Some minor changes in Mike's condition, but the chemo will go on next Monday as planned. The headaches have not improved. We will try a new plan. We hope and pray it makes Mike more comfortable. Have I mentioned lately that he is one incredible man. He just keeps taking it...

We continue along

2010-01-15T16:54:00.003-05:00

i have felt fatigue and headCHE MOST of the DAY. WE ARE DOING WELL AFTER a nice visit with ou our stake president last night. i have napped and hope for more good rest tonight.

2 days later...

2010-01-13T15:39:00.002-05:00

We are 48 hrs. out from Mike's chemo treatment. So far things are going well. Mike is experiencing extreme fatigue, but other than that (as if that is not enough) there haven't seemed to be side effects. His headaches have not subsided, but he has good pain medicine.

We, again, have had an amazing outpouring of support. How can we possibly thank each of you enough for all that you have done for us. I am having help each night and that is really helping me get through each day. There are truly lots of angels here on earth!

2010-01-11T18:39:00.000-05:00

The start of new chemothrtapy

2010-01-11T18:23:00.002-05:00

This morning I started a new chemotherapy treatment. It is administered by infusion with a new drug just approved last summer for the use of my kind of cancer. Initially it has had very positive results. We were actually at the cancer center for 4+ hours but hope in the future that it will only take about 3 hrs. Nancy says that I slept through most of the infusion. So far I haven't felt any side effects. I was given an anti nausea medication in conjunction with the infusion. We pray that there won't be any ill effects tonight.

Thank you for your continued faith, love & support.

Weekend update

2010-01-10T18:24:00.002-05:00

We have had quiet weekend... Yesterday the massage therapist visited our house again. Mike and I felt very relaxed after our massages. Mike slept very well last night. I have had help the last 2 nights and have also slept well. Sleep really does make all the difference!

Andy stayed with Mike this a.m. and I was able to go to church. It was nice to be there again. Two of the young men from our church brought the sacrament to Mike. We are so grateful for that. We had a couple of visitors and some nice phone calls.

We have anxiety about starting this new regimen, but tomorrow is our day and we will do it. Mike's headaches have not subsided much, so hopefully this treatment will make him more comfortable. We do worry about the side effects, but having weighed our options, this seems to be the best right now.

Your prayers in Mike's behalf will be so appreciated as he begins this new treatment.

Explanation of the treatment plan

2010-01-07T23:04:00.002-05:00

We made another visit to the cancer center today for a "training" to get the new therapy started. Mike will have the first infusion on Monday. We were told to expect the treatment to last about 3 hours. Mike will first get antinausea medication and steroids through the IV and then the chemotherapy. We were told the side effects usually start on therapy day and can last a few days. Since hemorrhaging is a side effect, the doctor has decided to take Mike off of his blood thinner. This was a question I asked on Tuesday and after thinking about it, the doctor made the decision.

Mike's immunity will be compromised with the treatment, so we will again have to avoid crowds and sick people. The hand sanitizer will be available when you want to visit. The dosage of steroids was again increased and I think Mike's headaches may be a bit better today. We are hoping this continues as he has suffered greatly with them for the last week.

This morning, after a particularly rough night, a dear friend called from far away Peru. It was so wonderful to hear her voice and feel her calm spirit. I truly believe she was an angel sent to comfort me. We also were recipient of other angelic help today in the way of errands being run, snow being cleared and food being delivered. We appreciate all of our angel friends.

A tiring day...

2010-01-05T22:03:00.002-05:00

Mike does have some new malignancy around the cavity where his first tumor was removed. Obviously the current chemo treatments are not working. A new chemo drug was approved July, 2009. We will try that course. Mike will get infusions once every 2 weeks. The doc said there aren't bad side effects like with most chemo. All we can do is hope for the best, whatever that might be. We think the doctors and staff at the cancer center are the best there are anywhere in the world. We will not be going elsewhere for any treatments. Right now this is cutting edge.

What a comfort it was to have all of our kids with us today when we visited the doctor. I absolutely love our children as adults. They are all amazing. Hannah stayed an extra night and will fly out early in the morning. She is with Ty and Kim tonight so she will be closer to the airport.

Thank all of you for your prayers in our behalf. We know a kind wise Heavenly Father is listening to each and every one of them. We are buoyed up by your faith.

2010-01-05T10:45:00.002-05:00

The news isn't what we wanted to hear from the MRI... We don't know the full extent of what is happening but will have a visit with the doctor today to discuss our next course of action. Mike is sleeping much of the time with pain meds every 4 hours. All of our kids will go with us to the doctor today. They have been such support to us.

2010-01-04T13:14:00.002-05:00

The doctor feels that an MRI will be the best approach to finding the cause of Mike's recent headaches. We will have that today and an appointment with the doctor tomorrow.

We have been through these so many times that now we feel that it is always best to know the facts. We feel peaceful and calm, knowing that our lives are in the hands of the Lord.

We so appreciate your prayers in our behalf. More later.

PRESSING FORWARD with faith

2010-01-02T14:35:00.003-05:00

After a headache which persisted for 3 days and imagining new tumor growth and lots and lots of anxiety, Nancy found a drug combination which made it go away after a morning nap. Nancy is the best caregiver ever. I am forever indebted to her.

Nancy here... I phoned the doctor this a.m. and she enlightened me as to what medications Mike could take. I didn't want anyone to think I am amazing with drugs :) Anyway, we are happy to report that Mike is feeling much, much better. We probably will proceed with another MRI at the first of the week. Persistent headaches are always alarming.

Happy New Year!

2009-12-31T11:36:00.003-05:00

We are anxious to get this year behind us... 2009 won't go down as one of our favorite years! We are looking forward to a new start in 2010, however. There is much to look forward to. Mike is making steady progress, albeit slow. The last few days have been rather hard on him as our friend with the same disease died last week. Yesterday I attended a lovely memorial service for her. She was a remarkable person. Mike was eager to hear about it. We were able to share some positive thoughts last night.

Mike got a pretty bad headache while at therapy yesterday and didn't feel like going this morning. I think he needs some extra sleep. He has had some anxiety, lots of late nights and lots of holiday activity. Rest always helps.

We want all of you to know that we have treasured your kindness and service this past year. We could not have come this far without you. We love our family more than we ever thought possible. Each has offered a measure of service that is unique and appreciated.

Please help us with the fight in 2010... May each of you be blessed in your lives.

Hannah is home!

2009-12-30T12:07:00.002-05:00

Tyler picked Hannah up at th airport last evening and they arrived homeabout10:00 pm. The security at LAX was tighter due to th"underwear bomber,but she had no trouble getting here.Hannah will be homefor a week.

Christmas aftermath...

2009-12-28T20:23:00.002-05:00

We are all very tired. We are anxious for Hannah to come tomorrow.

Christmas was good. We enjoyed family and friends. I am not one to leave the house decorated for very long... It is not unusual for me to remove the decorations on Christmas night. I waited until yesterday... While Mike slept, everything got packed away.

Mike had a couple of hours of therapy today. I stayed and did quite a bit of walking with him. He is so much more stable than the last time we walked together. He is very slowly regaining his strength. We are so grateful for small improvements.

Tonight we need to sleep...

another first today

2009-12-26T17:38:00.004-05:00

This afternoon I was able to visit my downtown office with the help of Nancy and Andy. I had not been there since August 23rd (the day before my last surgery.) It really needs some attention. Nancy mentioned that maybe she could accompany me and we could go down for an hour or so each day to work on it. I may be heading back to work once I get things organized so I can get to them! I am glad the architect of that building thought through handicap accessibility :) The elevator worked well.

Nancy here: We are resting today after lots of food and fun yesterday. Will and Maggie were so excited yesterday. I think they played hard enough to sleep for the next few days!

Will came into my bedroom and wanted to lay on my bed and watch TV... I explained to him that the TV had been moved to Poppy's room. I told him he could lay on Poppy's electric bed and watch TV for a time. He got up on Poppy's bed, looked around the room, noticed his toys in the closet, the computer and the TV and said..."Nanny this is the coolest 'woom' ever!"

Christmas meals

2009-12-25T17:26:00.003-05:00

This morning started with our traditional sausage-egg casserole made by Nana and cinnamon rolls and fruit salad. Lunch was breakast leftovers, we are just finishing Nana's Christmas dinner -turkey,dressing,sweet potato casserole, a potato & cheese dish, there was also deviled eggs & other delectable items.

The grand children each opened a couple gifts, but our adult gift money was donated to a christmas charity which provided a complete Christmas for 58 needy families.

The last two days have been tiring, but we are so grateful that we have been able to spend them with our families... What a joy!

Merry Christmas!

2009-12-23T21:42:00.002-05:00

We didn't get Christmas cards in the mail this year. For all of you who read this blog, which we know are many, please accept this as our Christmas wishes to you...

We are so strengthened by the wonderful Christmas spirit that abounds in our hearts! Our lives seem to have been turned a bit upside down this year. On May 8th we knew our lives would never be the same. We have had nearly eight months to learn, pray, serve and be served, and ponder on the meaning of life. We accept this challenge we have been given and are determined to perservere. We have found our "new normal" and are progressing each day.

This is a joyous time of year. We are so grateful for family and friends who have been so generous with their time and talents in our behalf. Each card we receive, each casserole we eat, each time our grass is mowed, or snow scooped, each time we have a visitor, our hearts are filled with pure love for the giver of these great gifts. We recognize that each of you are angels put in our path at this time to do things for us that we cannot do for ourselves. This is what Christ did when he was on earth... Yours is Christlike service.

We have unwavering faith that the will of our Father will be done in our behalf. We know he knows us, loves us and wants what is best for our lives. We are so grateful, especially at this time of year, when we can stop for a moment and remember Him whose birth we celebrate. We are grateful for his life, his example and his undying love for each of us.

We pray that your families will be richly blessed this year and that your hearts will be full of gratitude for the joy that still comes from that first Christmas.

Merry Christmas to each of you... Love, Mike and Nancy

progress

2009-12-22T10:29:00.003-05:00

Nancy says her dad is going home today, so he must have made good progress. He will still need some cardiac rehab. I have been resting today and a therapist will come by for a visit this afternoon. I pray that Bill will obey orders in his recovery at home.

Nancy here: My dad is doing very well. He is anxious to get home. We still plan on a wonderful Christmas Eve with my parents at their home. We are so grateful that things have turned out well for my dad. We are also so grateful that Mike has made such wonderful progress thus far. Thanks to everyone for their continued support. Again, we couldn't have handled it through this latest challenge without your prayers and service. We feel very, very loved.

Challenges...

2009-12-21T17:05:00.002-05:00

Today my dad had a stent placed in a vessel near his heart. This is his second. He is up and about at this point and giving the nurses on the 3rd floor lots of grief. He did suffer a heart attack and will be involved in some cardiac rehab. Again we are grateful for the tender mercies of the Lord in preserving his life. My sisters have been stellar in their care and attention to my parents while I am busy with the care of Mike. Thanks to all of you for prayers in our families behalf. Again, they have been heard and answered.

Mike had therapy again today. I must say he was a bit grumpy with a headache when we went but after time in the water, he was a happy camper! He came home relaxed and ready for a "long winter's nap."

We have had some wonderful visits with friends in the past few days. Thanks so much for your help and visits... We love you all so much

A new challenge

2009-12-20T10:48:00.002-05:00

Yesterday afternoon Nancy's dad went to the hospital with chest pains. The thought is that he had a mild heart attack. He was admitted to the cardiac unit. More tests will be run, probably tomorrow to determine if he needs another stent. He is otherwise remarkably healthly for an 82 year old man. Nancy has a mighty full plate taking care of all of us usual. Please keep Nancy and her family in your prayers.

SLOW SATURDAY

2009-12-19T10:14:00.003-05:00

After a 5th straight night with no problems with the chemo drugs, we are declaring victory! I have slept a lot today. We have friends coming for pizza tonight. Otherwise, no other activities, except a shower tonight. It is nice to have a slow day ocassionally.

it's Aqua therapy Friday!

2009-12-18T10:22:00.004-05:00

Can you tell I'm excited with this part of the process? I look forward to the comfort of the of the water and floating & exercising. It is the best!

We have had 4 nights of chemotherapy with zero problems. Things are going very well. I am tired and sleeping a bit more during the chemo, but that is a small price to pay.

I attended Muncie Sunrise Rotary via skype from my room. I even had breakfast in bed while attending! It was fun to greet each one as they dropped by the camera to talk. It truly was the next best thing to being there. Thanks to my good friends, Andy and Kathy (and Nancy) for making this happen.

2009-12-17T15:38:00.002-05:00

We just ended a meeting with our accountant and insurance agent. The meeting went well. We were all uplifted. I am so grateful for the people that Mike has associated with, who now are helping us make plans for our future. We have such confidence in decisions that are made in our behalf. Heavenly Father NEVER leaves us to make our own way... We have to remember to knock...

Wednesday's schedule

2009-12-16T10:33:00.004-05:00

My occupational and physical therapy are at the end of the day, so I have tried to rest all morning. The chemo pills have also been no problem thanks to Nancy's excellent attention to timing each step. I am so grateful for her.

Monday's new start

2009-12-14T13:21:00.003-05:00

We had an early morning occupationaal therapy session followed by aqua therapy. They are going to work on my left arm & shoulder with great intensity. I am still enjoying the water so much. We did many exercises today, so i am a bit more tired. We are starting my 4th round of chemotherapy tonight, so I must follow a time schedule very closely so i won't get sick. We did it perfectly last time with Nancy's close attention. We are confident this round will also go well and we will finish on Friday and get over the fatigue before Christmas.

More Water Therapy and a little Occupational Therapy

2009-12-11T20:13:00.004-05:00

Today's aqua therapy was just as pleasant as yesterday's. The therapist equipped Mike with a life vest (collar) and let him lie back and float. He was able to exercise his legs and was so very relaxed and comfortable. He walked very freely again. Any of you out there with a pool, might expect a visit from us this next summer! Mike started occupational therapy today as well. We will try to get some use out of that left hand...

A good friend from Illinois visited today. It was such a joy to see her and partake of some of the goodies she shared with us. Mike and I commented tonight that we are so grateful for the good, good friends we have. Each of you make our lives simpler and more fullfilling. Hope you enjoy the picture of Mike standing in the water as much as we love sharing it with you!

Aqua therapy-a most wonderful experience!

2009-12-10T11:17:00.002-05:00

We made our 2nd trip to the outpatient rehab facility this morning and it far exceeded my expectations. The pool has a ramp and plastic wheelchair. The therapist took me down into very warm water. A therapist had me get out of the chair on my own and hold onto a hand rail where I walked almost the length of the pool. We then did some strengthening exercises for my left leg and some for my right. I then walked sideways back to the chair and ramp. it was very warm and comfortable in the water and I didn't come away completely exhausted. I loved it and wouldn't mind doing it every day. This is definitely the right therapy for me right now. The Lord continues to to direct my path to recovery. We are counting our blessings each day.

Note from Nancy: The pool area was so hot it reminded me of where I could go if I don't behave!!! I could not stay and watch the entire therapy session as I was about to implode. We are so very grateful we are starting this new chapter... Outpatient therapy was indeed the right move. Mike was happier today than he has been in months! We should never take for granted our ability to move about freely. Being in the pool used to make my kids very, very tired. That always meant that good naps were in store... I hope the same happens for Mike today :)

Tuesday happenings

2009-12-08T15:58:00.003-05:00

We got up early today for an appointment with the medical oncologist, D. Spahr. Nancy & I have also talked with a therapist today. I havebeen resting since lunch so I can attend a LifeStream board meeting this evening. It will make for a full day, but I will feel ike I have contributed in some positive way.

The doctor confirmed in a very straight forward way that the tests show that I have no active cancer! The4th round of chemo (starting Monday) is purely to prevent new growth. That is great news! Thanks for faith &prayers - it is making a difference.

outpatient rehab report

2009-12-07T12:38:00.003-05:00

We had our initial trip and evaluation at the outpatient therapy center this morning. We both were very comfortable with the therapists and the facility, including the pool. I start aqua therapy on Thursday and am excited to see what we'll be doing. We are glad that all of our appointments are not going to be so early in the morning! The therapy will be three times a week. I am looking forward to making great physical progress having made this move.

Note from Nancy: Mike did such an amazing job in rehab this a.m. He is gaining strength and stamina. We see the oncologist tomorrow to get blood work before chemo starts the following Monday. We are so grateful for the blessings we are receiving through this journey.

aSunday in December already

2009-12-06T16:42:00.002-05:00

In some ways this year has moved very quickley, but some things continue to creep along (like my recovery.) I try to be patient and wait on the Lord's time. We still have faith in His plan for this time of our lives.

First thing tomorrow (Monday),we travel to an outpatient physical therapy facility for evaluation and to set up a schedule. I'm a bit nervous about what to expect, but am determined to gain body functions & get back to serving others.

I send you my sincere gratitude for your love, support and prayers. Please continue as I take this next big step. Love Mike

Another day, another doctor's visit

2009-12-04T18:32:00.002-05:00

Today was cold! Mike and I got out for an excursion to the doctor. The doctor was pleased with Mike's progress. We are lowering the dosages of some of the meds Mike is taking. We also made a quick visit to the rehab floor to see how the patients were using the Wii Fit. We were able to visit with Mike's occupational therapist. It was fun to see her. We hope to attend some of the conference that will be held at our church this week end. I can't believe another week is coming to a close. Is it almost time for Christmas?

Loading and unloading...

2009-12-02T20:23:00.004-05:00

Today Mike and I loaded and unloaded from the car 8 times! We went to the doctor this afternoon... His office backs up to the eatery that serves Mike's favorite chocolate milkshakes. We couldn't help ourselves from driving through. This evening we attended a ribbon cutting at a nursing/residence facility for the opening of a new Alzheimer's unit. Mike's office had helped with some of the space planning. It was again nice for Mike to get out of the house and visit with some folks in the community. Tomorrow we say good bye to Hannah. It has been great having her here again. Thanks to Tyler, we now have the capability to Skype... We have had fun the last two evenings talking to and seeing Will and Maggie on the computer.

We are both physically tired this evening, but have had a good day again. Thanks to so many of you who greet Mike and I and let us know that you have been praying for us. We know our collective prayers are being answered. You each mean so much to us.

United Way Award

2009-12-01T12:32:00.004-05:00

Nancy& I got up early,bathed,dressed,and to the convention center by 8am. it was the campaign United Way campaign"victory program. they also announced the student winners of the essay contest and a new volunteer award named after me. i felt humbled and honored. it is specifically for excellence in volunteer leadership for my wide volunteering involvement over the last 20+ years.

Just to clarify; my out patient therapy is not at the hospital, but at a new facility on Bethel. parking &long walks shouldn't be a problem. we have our initial meeting/evaluation on Monday morning.

Note from Nancy: If Susan or Kimberlee would like to meet us there that would be fine :) Thanks for the offer!

A new chapter begins

2009-11-30T12:51:00.002-05:00

Nancy and i met with the home healthcare supervisor this morning &will transition to outpatient care bext week. this is a huge change as we will not have nurses& therapists herer5 days each weeek. we will be driving to therapyand handling all my personal health needs on our own. it will take a significant adjustment, but we expect greater progress in the long run.

Sunday after Thanksgiving

2009-11-29T19:34:00.006-05:00

As we drove to church this a.m. we noticed many, many Christmas decorations. It doesn't seem like it is time for that yet... Our time references have changed so much. I suppose sometime this week Hannah will help with decorating. She will have to come back and help take it down. We may downsize the decorations this year.

We ate roast for dinner. It was nice to not eat turkey again. Turkey is great for a bit, but the first "real" meal after Thanksgiving leftovers always tastes so good. Mike has had a very good appetite lately. I told him today that he is going to have to start moving more if he plans on eating lots...He needs to fit into his clothes :)

We have enjoyed having family visit for the last several days. Allen returns home tomorrow and Hannah at the end of the week. They have been such a help to me. We have given our "regulars" the week off.

Last evening my sister treated Mike and I to a massage. The therapist worked on each of us for over an hour. It was heavenly! I slept like a baby last night while Hannah took care of Mike's needs. Mike has been sleeping fairly well also. I think he was more relaxed than usual last night. We may have to make a habit of massages!

We are so thankful at this time of year for all of our amazing friends and family members. We are thankful for our faith. We thank each of you for your kindness and care during these last several months. Our journey continues a day at a time. Thanks for walking with us.

laid back Saturday

2009-11-28T09:54:00.002-05:00

rick,Sally &Cami left early today to return to Georgia.i've beendozing in bed and decidedi' been there long enough,so blogging was my next priority. we still havel of lots of food,so we don't need to go anywhere. We are thankful for a wonderful days with our family.We hope you have been blessed with a great holiday as well

Black Friday...

2009-11-27T11:51:00.002-05:00

We made it through Thanksgiving and are on to black Friday. We have no plans to shop as we have done so much of that online. We are hoping that we can get Mike to his office today. Mike's family is visiting and his brother offered to make the trip to the office with us. We are anxious to eat some of the left overs from yesterday. We are blessed with many... Allen and Hannah are here, Allen for a few days and Hannah for another week. It was so nice for the monitor to go in their room last night. I slept for 9 straight hours last night. Mike slept for 7. My how a good night's sleep helps revive one's soul. We have so much to be grateful for... Let us never forget.

Giving Thanks!!!!!

2009-11-26T18:57:00.003-05:00

how grateful we are for this special day of Thanksgiving. We have had family here constantly the last 2 days with Hannanh & Allen here and Nancy's family here for a wonderful feast. i have even gotten in a couple of naps while football is on tv. we have lots of food left if someone out there is still hungry.

we are extremely thankful for the porogress we are making from this medical challenge. the Lord continues to bless us with healing power and strengthto endure. we are also thankful for your love, support and prayers.

trip to rehab flooor

2009-11-24T16:25:00.002-05:00

this afternoon Nancy hauled me out of bed and we went toBMH3rd floor rehab to deliver a thankyou gift of a Wii Fit system. they were alll thrilledto see me and gratefulfor the gift. ffor the gift, we hope they will find creative ways to engagepatients. i got lots of hugs&a kiss from my favorite nurse. it was a wonderful excursion.

Mike

Busy Monday

2009-11-23T17:14:00.002-05:00

we got some good restlast nightand,we have beenbusy. our physical therapist came this afternoon. i walked a record distance for her and she was pleased.

Nancy picked up a "Wii-Fit" system for therehab flooor at the hospital as a thnkyou giftfor their service during my stays there. We hope to mtake a field trip this weeek to deliver it.

Sunday update

2009-11-22T16:21:00.002-05:00

we got a bit of a late start to church,but were still on time. we were both very tired after abusy weekend with guests Nancy stayed up too late talkinglast night.

we both need more naps today and some rest tonight.

Round 3, Day5

2009-11-20T15:57:00.002-05:00

you willnote a new poster today. One of the therapists suggestedIget more involved in the blog.Tonight is my lastday of chemo for 3 weeeks.

Last nightwe went to a public showing of a commmunity health center we designed. it was wonderful to seelots of clients and community volunteer friends. i wastired and slept well, but i'm"still tired this afternoon after sleeping most the day..

Nancy is busy making my dinner to eat before th medications start. we look forward to one more good nightbefore the break.

Mike

It matters that things get done, not that any one in particular does them.

2009-11-18T15:37:00.005-05:00

Having chemotherapy causes some real introspection. Mike had a restless night last night, but dear Andy was here to quietly chat with Mike. I slept very soundly after having a restless night on Monday. Mike has an appetite and is up and ready for physical therapy today. We are trying to conserve energy to go to a community function tomorrow. I think it will be so good for Mike to get out and so good for many to see him.

We are so grateful for time we have together to share our thoughts and feelings. Mike is such an incredible man. Last night he was asked by a friend to tell some of his "accomplishments" and things he is most proud of. His comment was, "It doesn't matter that I did those things, it just matters that they got done."

Round 3 underway

2009-11-17T10:42:00.002-05:00

Mike started round number 3 of his chemo treatments last night. He took it like a pro. We both had anxiety leading up to it since the last time didn't go so well. Last night was great. Mike slept well with no nausea. He ate a good breakfast and is ready for the rest of the day. We are so very grateful for the many prayers, kind thoughts and words in our behalf. You pulled us through this one! We know Heavenly Father hears and answers our prayers. We are thankful people.

It's the week end again...

2009-11-13T16:17:00.002-05:00

Today has been a good day for us. Mike is making such great strides in his physical therapy. He is now able to get to the shower with minimal help. We are so grateful for the work that our contractor friends did in our bathroom to make it accessible for Mike. We are also so thankful for our physical therapist who is so patient and kind as we try new things. We are planning on a "Saturday night shower" tomorrow so Mike can be ready for church on Sunday. Again we will attempt to go to church but must not shake hands or give hugs. Mike's chemo starts again on Monday. The results of Mike's blood tests were great last Tuesday, so it looks like Mike is strong enough for another round of treatment. We will have some out of town guests visiting at the end of next week. We feel so blessed that they are willing to travel long distances for a visit. We are truly surrounded by wonderful people.

2009-11-11T14:12:00.003-05:00

The doctor's visit went well yesterday. As is usually the case after an outing, Mike is exhausted. Today he has slept the morning away. The therapist just called and said she has a cold so she won't be coming until tomorrow. Looks like we have a day without any home health care! It is kind of nice to just have peace and quiet.

Mike and I have enjoyed doing some Christmas shopping on the internet. We are looking forward to the holidays. It will be wonderful spending time with our family.

Thanks so much for everyone who has helped us recently. Staying with me during the night, meals, yard work, flowers, visits, etc. have been so appreciated. We continue to be comforted by your goodness.

Sitting together in church

2009-11-08T18:17:00.002-05:00

We started the process very early... but we made it to church this morning. Mike was determined to go and go we did! It has been 11 weeks since Mike has been to church. I was beginning to wonder if he would ever be able to sit with me in church again. What a difference a week makes.

It was our children's program today and it was absolutely delightful. The children reminded us of the importance of eternal families. Their sweet messages and music filled our souls.

We plan another outing on Tuesday to see the doctor. Chemo starts a week from tomorrow, so we need to make hay while the sun shines!

A nice outing...

2009-11-06T20:57:00.002-05:00

Yesterday Mike got in the car for the first time in 7 weeks. We drove and drove and drove! We visited 4 project sites, went the BMV and got a handicap hang tag, stopped for a few errands, got gas and came home. It was glorious. Mike was dog tired today, but still had the stamina to walk with his quad cane when the therapist came. We had a nice visit from an old friend today. We are grateful for every positive moment we share. We are thinking of church Sunday... but must be very, very careful of germs... Mike may appear in a mask and will definitely not shake anyone's hand or hug anyone.

2009-11-03T18:39:00.002-05:00

The word from the doctor today was good. Mike has had no significant changes since the last MRI. We are grateful for the news. Thanks to everyone who prayed and sent good thoughts for us. We will press forward again and pray that the next round of chemo will be doable.

2009-11-03T08:32:00.003-05:00

Mike had another MRI last evening. It went well. He said it was the easiest he has had yet. I am sure that is due to the prayers of many in his behalf. We feel very peaceful as we await the results of the exam. We continue to have angels who help us every day as we continue this journey. I received another beautiful bouquet of flowers yesterday, signed "love Mike." Thanks to whoever is sending those in Mike's stead.

Halloween

2009-10-31T08:49:00.003-04:00

Happy Halloween... I have already eaten most of the Halloween candy. I just decided that it probably wouldn't be a good idea to have lots of germs come into our house tonight. That said, I will now finish the candy :)

We will be having another MRI on Monday evening. Yesterday the doctor increased the steroid a bit and lo and behold, Mike woke up this morning with an appetite! Andy will stay with Mike for a while today. I have some things to do... I need to buy a clock with BIG numbers so Mike can see it from his bed.

It is so hard to believe that tomorrow is November. I will have to remember to set the clocks back tonight. I wonder if any of us will get another hour of sleep tonight?

Quiet day

2009-10-29T19:46:00.001-04:00

Today we didn't have any therapists or nurses. Mike was able to eat a bit more today. The nausea is subsiding somewhat. Eventhough he is still sleeping most of the day, he did get up and do some exercising this afternoon. So far he isn't losing any of the strength that he has gained.

We had another plumbing issue today...the third in three weeks! When I called the plumber, I reminded him that we are some of their favorite customers. Surely when this issue gets fixed there won't be anymore. We don't have anymore faucets or drains!

Andy celebrated his birthday yesterday. What a joy Andy is in our lives. We are so thankful for his tenderness as he helps care for Mike.

2009-10-27T17:51:00.002-04:00

We are experiencing the aftermath of chemo. Mike sleeps about 20 out of every 24 hours. We are able to have some good conversations at this point.

We finally let Hannah go home yesterday. Her visit was so wonderful for us. We just got word that Allen's grandma died so she and Allen will be heading to California soon.

We have faith in our Heavenly Father's great plan for our lives. We know there are lessons we still need to learn in this process.

the week end is finally here.

2009-10-24T09:42:00.003-04:00

Mike has completed this round of chemo. The last 5 days have been brutal. Mike is very, very tired. We are hoping he rebounds well in the next few days. His pattern has been to sleep almost all day and night. Thanks to all who have stayed and helped during these past 5 days. We now have three weeks until we start again.

2009-10-21T11:59:00.002-04:00

We made it through day 2 of chemo with flying colors! We spent a lot of the day working on relaxation and deep breathing. Mike was very exhausted from the previous day. Already this morning he has had physical therapy, getting into and out of the car 3 times and walking with the walker.

The sunshine and warmth are such a welcomed blessing today. We plan on taking a walk down the street today. A Concannon's roll tasted very good to Mike this morning:) It didn't taste bad to me either!

Ups and Downs...

2009-10-20T16:55:00.002-04:00

We had a good day followed by a difficult one. Mike started another round of chemo last night and didn't fare so well. We have spent the day today trying to be calm and relaxed and have a new plan for tonight. Hopefully a new cocktail of anti nausea drugs and a new time of administering the chemo will make all the difference. What a difference a day can make!

What a glorious day...

2009-10-19T18:54:00.002-04:00

Today has been momentous. Mike walked again!!! He has been standing very well and today after making 3 transfers to the car, the therapist put a walker in front of him and he took several steps. It was so wonderful to see.

The kids were here over the week end and it was great having everyone together. Will and Mags are as cute as ever and Mike really enjoyed seeing them. Mike still tires very easily, but he has improved about 1,000 percent since he came home a few weeks ago.

We have been so blessed to see daily improvement. Eventhough we started anew, the progress is happening. Thanks again for all of the care and attention from friends and family.

Fall/Winter has arrived!

2009-10-18T13:08:00.002-04:00

A few days have passed since I last posted... I noticed yesterday how chilly and fall like it is outside. This is not my favorite season of the year, but it seems this year it may pass by without my noticing:) This morning it actually felt like winter was here.

We are finally getting somewhat adjusted to life at home rather than at the hospital. Mike's therapy is going well. He is getting physically stronger each day. He has been sleeping much better at night and therefore I have too. I think we are about ready to "fly solo" at night. We have truly been appreciative of the night time caregivers. Mike has really begun to rely on them in order for me to get a good night's rest.

We have enjoyed having Hannah home for a few days. She always brings great peace with her. All of our children will be visiting today. It will be great to have them all here.

We continue to have great faith and confidence in the Lord's plan for our lives. We feel very loved.

Big day out...

2009-10-15T11:48:00.002-04:00

Yesterday after an hour of physical therapy (where Mike was able to transfer to the car,) Mike was transported to the doctor's office. His blood count was high enough to start another 5 days of chemo, beginning Monday. He was so extremely tired after all of the exercise and the excersion. He slept quite well last night.

We are so excited to have Hannah coming today. Tyler will get her from the airport and then he and one of the grandbabies will bring her home. I have Mike back in bed now so he will feel rested for the visit this afternoon.

I think we are getting into a routine that is feeling much more comfortable for Mike. He continues to be very tired a lot of the time. We are beginning to have some good conversations, however, and Mike is cracking a few jokes :)

Thanks to all who have helped with care, meals, cards, yard work, etc. Your service and sacrifice for us will be greatly rewarded with blessings in your lives.

Kind people...

2009-10-13T11:51:00.002-04:00

Thanks to so many kind, kind people who have helped us out these past few weeks. We are starting to get into a routine and trying to make steps ahead. Mike is making strides with the physical and occupational therapists. He was able to stand yesterday for quite a while. It was wonderful seeing him vertical again. Thanks for your continued prayer and support in our behalf. We do realize we need help and there are so many who are willing.

Slave driver...

2009-10-10T15:35:00.002-04:00

The occupational and physical therapists came yesterday. I saw what Mike can still do... It's up to me to encourage him to do the exercises on their days off. I find I am a real slave driver :/ Mike is worn out today from our 2 workouts... We still have one to go. I have learned way to much watching PTs. Mike thinks I am going to let him off easy... We ARE going to push forward and do as much as possible.

We sat on the side of his bed today and I made him hold hands with me and squeeze as hard as he could. He is gaining strength again and I didn't mind holding his hand. He is now staying up in his chair for 2 1/2 to 3 hr. stretches. If we can get him to transfer to a car we will be on the road again soon!

It helps our attitudes so much when the sun shines. Today has been such a gorgeous day. It renews our spirits when we can feel the warmth of the sun. Grandma sent a flannel quilt a few weeks ago. Mike is so warm and comfy under it. It looks so much better than those sterile white blankets at the hospital :)

We decided today that we should call at least 3 people to help brighten their day. It's hard not to look totally inward in times like this. Mike still has one phone call to make. If you got a call, I hope it helped :)

Good day...

2009-10-08T18:21:00.003-04:00

We have had a very good day today. Mike has been up 3 times and even did a bit of physical therapy today. We are trying to wear him out a bit so he will sleep well tonight.

We are not accustomed to "baby steps" so this last week has been a bit of a struggle. We are making our way and figuring out a routine. If anyone wants to call Mike during the day, I will turn his phone on. Usually after 10 is a good time.

He needs to start communicating with folks again. He is getting bored with me...(Don't know why :) Thanks again to everyone for their extreme kindness and love. We are going to make it!

2009-10-07T18:46:00.002-04:00

After feeling totally frazzled yesterday, the sun came out this morning. Some much needed help arrived this morning! Mike has not felt well at all today. He is in a lot of pain from the blood clots. After several calls to home health nurses, and the doctor, we got some much needed relief.

I can't begin to express my undying love for friends and family who have stepped in to help when I have reached my limit. I was not sure until last night I understood what my limit was. I now know I can't do it all.

2009-10-05T20:19:00.002-04:00

After a long tiring day... I was helping Mike with a bath and then getting ready to put his blankets on for the night... I inadvertantly scratched the bottom of his left foot and his toes wiggled!! He was able to wiggle them several more times. I have noticed that he is feeling things in his left leg, usually pain, but feeling just the same. The edema from the blood clots is gone. Maybe things are going uphill for a change??

Thanks to whoever sent me flowers today and signed Mike's name. I know Mike would have sent them if he could :)

Sunday

2009-10-04T20:46:00.003-04:00

We felt great comfort from the messages from our church's General Conference today. Thanks for the phone calls, meal, and visits. We are working on keeping our spirits up... Things always look brighter in the morning :)

Giant steps...

2009-10-03T12:09:00.002-04:00

Mike had a few rough days after returning home. This morning, however, he was able to get up into his chair, tool around the house for a while and then make the transfer back to bed without much effort. He is still strong. We are grateful for the progress he made in physical therapy and pray that as a therapist comes into our home, he can regain even more strength.

We are grateful today for a quiet day. We will watch the General Conference of our church which is broadcast on the TV (for those who have the BYU channel.)

Cinnamon rolls re being made as we speak... If you want one, come on over, else Mike and I will eat all of them! Hope all of you have a wonderful day.

Home again...

2009-10-02T12:08:00.002-04:00

Our trip home wasn't as we expected yesterday, but we are home nonetheless. Mike slept very well last night. His morning meds have been administered (including one shot) and he seems to feel comfortable with his new bed and surroundings. Tyler and Andy spent the day with me yesterday and Ty spent the night. It was nice to have him here. Andy is coming tonight. There are a few others who will take a turn. For a while I feel much more comfortable not being alone. There is a home nurse coming soon. We will have physical therapy at home for a time.

My day has been so odd... This is the first day since the last part of August that I have been home and didn't have to drive to the hospital! It is wonderful :)

Thanks for your continued concern, love and prayers in our behalf.

2009-09-29T21:30:00.002-04:00

A friend of mine posted this quote on Facebook the other day. She is going through a difficult time in her life as well... I hope she doesn't mind if I use it today...

"God never leaves us alone, never leaves us unaided in the challenges we face... On occasion we may feel distanced from God, shut out of Heaven, lost, alone in dark dreary places...but even then the Father of us all is waiting and assisting. And always there are those angels who come and go all around us, seen and unseen, known and unknown, mortal and immortal."

I have felt Heavenly Father's influence in my life today. Angels have been all around today. Thank you.

It looks like Mike's hospital stay is about to end again. We are not completely sure of the day, but hopefully sometime before the week end.

2009-09-28T20:56:00.002-04:00

Great day. Better food. Into a chair twice. Good sleep. Good night!

Wonderful friends...

2009-09-27T22:30:00.002-04:00

Today we said good bye to some of our wonderful friends who have been here to visit with Mike and I. They brought with them such an amazing peace and comfort. At some point I will write about their thoughtful gifts.

Mike had another day of sleep, visits from friends and family, hospital food that didn't agree with him, and getting back into a chair. We look forward to another week and hope that this is the week when Mike will return home.

A Calm, Peaceful Day

2009-09-27T01:13:00.002-04:00

We had a good day today. Mike made great progress. The pain from the DVT is becoming more managable. Mike ate lunch from a chair rather than his bed. What a blessing it was for him to sit in a chair for a few hours.

So many wonderful people stopped by to see Mike this afternoon and evening. Thank you for brightening his day with your visits. We welcome visitors if the door is open. Mike may be sleeping and I may not be there... Hopefully you can judge if the time to visit is right.

Today I have been deeply touched by the gifts of some dear friends and family. Your time, talent, and sacrifice is so humbling. I will cherish the warmth and the beauty of these gifts and your love forever.

2009-09-24T20:03:00.002-04:00

Another day at the hospital... Some ups, some downs. Mike is a trooper... The chemo went well. His leg pain is a bit less now that he has some fancy hose to wear :) My bed is calling...

the "meeting" went well

2009-09-23T22:13:00.002-04:00

The doctors were all so kind to listen as I ran a "board meeting" this a.m. We are so very grateful for their expertise and knowledge. We are all on the same page now and are moving forward with much more confidence. We decided that right now we are going to concentrate on chemotherapy. Since Mike seems to have no active malignancy right now, the chemo can begin in earnest. It will be administered 5 days out of every month. It is a pill rather than an infusion. Mike tolerated it well at a lesser dosage and from all indications will tolerate the stronger dose.

We discussed Mike's homecoming and decided to wait until at least Saturday so the chemo can start in the hospital.

After our meeting Mike complained of some very intense right leg pain. After another dopplar this afternoon another clot was found. Blood thinners will begin again tomorrow.

We know our courage comes from above. We are relying on the strength and faith of each of you. Thank you again for your prayers and good thoughts in our behalf. I feel as though we are fighting a good battle. We are even becoming good strategists! The battle isn't over. Our children have been such magnificant support to us. They are wonderful adults. We have so much love and admiration for each of them.

Priorities

2009-09-22T22:06:00.003-04:00

Today Mike and I decided we need to make priorities concerning his care. We have several doctors who are working to make Mike's body better. However, it seems that there isn't a real connection between them and us right now. After being empowered by my therapist this morning,:) I decided to take charge of Mike's care. I have requested a "family meeting" with Mike's doctors tomorrow morning. We must all get on the same page so we can do what's best for Mike and get him home and functioning well. My boys will be there to ask questions and listen with me to answers.

I lost my confidence on Sunday when Mike had to return to the hospital. We are now planning on moving forward with some home help. We are renewed in our determination to press forward. I will write more after our meeting...

2009-09-21T20:00:00.002-04:00

Today was a much calmer day for us. Mike feels well today. He has rested a lot and we feel much safer knowing he is being well taken care of on the oncology floor. The doctors are monitoring his situation very closely and assure us that he won't be sent home until we are ALL ready.

We have a hospital bed coming when Mike does return home. We have some more furniture arranging to do, but we know Mike will feel more comfortable and safer with hand rails and the ability to raise and lower his head, etc.

I felt like I couldn't move forward yesterday... Today we have been blessed with rain and sunshine and an abundance of love from friends, family and a kind wise Heavenly Father.

ER Visit

2009-09-20T19:52:00.001-04:00

We struggled this morning with Mike having a couple of seizures. He is back in the hospital... I am too tired to write more.

The homecoming

2009-09-19T20:16:00.002-04:00

We got Mike home today around 2:30...We both cried when we pulled into the driveway and saw the huge "Welcome Home Mike" poster on our front window... Thanks Nan! We realize we have quite a bit of adjusting to do... We had a system in the hospital but now have to develop a new one. I am sure in a few days we will have the routine in place. Until then, if we could limit visits and phone calls it would be great. I am thinking by tomorrow night, we may have a shower taken and medicines given :)

We will start out patient therapy sometime next week. We have a doctor's visit scheduled as well for the beginning of the week. Please pray for us to be able to manage well very soon.

The cookies didn't get baked today, but I did get breakfast ready for tomorrow... Tonight Mike will have to eat an ice cream bar :)

Again, thanks to everyone for your prayers and support. This was a monumental day. We didn't ever dream Mike would be in this situation. He is working hard and so are our kids and I to help make this transition to home move along smoothly. We have hard work ahead of us... Hopefully after a good night's sleep we will be ready to face things head on! Good night to all and may our Heavenly Father's richest blessings be poured out upon all of you.

Last minute instruction...

2009-09-18T19:49:00.002-04:00

Today has been a whirlwind... I got up later than I had planned. Rudy had a big surprise for me on the floor when I did get up :( (In Rudy's defense... He has NEVER done this before.) The contractors were here most of the morning. We have new grab bars, a new shower, a new toilet, a new chair that has had 4 inches added to the legs, a new cane, a new wheelchair... and who knows what else. I went with Mike to occupational therapy this morning where he took a shower by himself, dressed himself and then did another 45 minutes of physical therapy complete with walking, and exercising his legs and arms. We received a lot of last minute instruction for exercising etc. at home.

We are set up for numurous doctor's appointments and out patient therapy appointments. There is no rest for the weary!

We took cookie trays to the physical and occupational therapists and another to the nursing staff. Our friend (the baker of the cookies) even threw in an extra tray for the night shift in case all of the cookies were eaten by the day shift.

The house got cleaned today thanks to another dear friend of our family. I planted some bright yellow mums outside the front door this evening. I need to do some grocery shopping so I will be able to start cooking for Mike again. I don't think I have cooked for a month!

I don't think we could be more ready for Mike's homecoming. I am so amazed that he has perservered each and every day of these past 4 1/2 weeks. Without his determination and optimism there is no way this homecoming would be happening tomorrow. I am so anxious to just sit on my couch and look at Mike sitting in his new chair!!! We are truly blessed and will always remember to be grateful.

An amazing day...

2009-09-17T21:04:00.002-04:00

Today was such a great day! I was so nervous about Mike coming home and being able to maneuver through our house. I don't know what all the nerves were about... He handled everything like a pro. He liked the new (sturdy, not gushy) chair I bought yesterday. The therapist thought it should be a few inches higher... I guess my feet will dangle from it, but it will be the right heighth for Mike. Our contractor friends are going to fix it tomorrow. He walked into the bedroom and was able to negotiate getting into and out of bed. He then walked into the bathroom and was able to sit on the new shower seat and swing his legs over the tub. He walked back out into the dining room and we all had lunch! The bottom line here is that we passed with flying colors :)

Don't anyone think that I am wonder woman and pulled a great lunch together. My good friend who caters helped out with the main dish and great fruit salad and cookies. I steamed rice and cooked some broccoli in the microwave :) It was so good to just see Mike walk through the door, that I don't think I will ever take that for granted again.

Tomorrow we have planned a little party for the caregivers on the 4th floor. It happens around noon... Mike and I are both excited to give something back to them.

This has been such a trying stay in the hospital. Mike has worked so hard and we are so ready for him to be home! We have almost made it...

Home visit

2009-09-16T22:52:00.002-04:00

Mike and his therapist will be coming to our house tomorrow for a bit of instruction on getting around safely in our home. We are gathering the necessary equipment and hope to be ready for the big homecoming on Saturday. Today Andy and I moved furniture, took up rugs and rearranged some things. I hope we pass the test.

Here's a cute "Mikeism "... Today I walked into his therapy session and he said: "Hi honey tomorrow we are having guests for lunch." I said: "That will be great... how many?" Seems he wants the therapists, and the contractors to eat lunch with him at our house. It will be delightful :) I can't wait!

We have been so blessed with amazing caregivers over the past month. We have come to know them like family. They do their jobs with such excellence! We hope we can thank them adequately.

I'm back...

2009-09-15T21:05:00.003-04:00

The last few days have been rough ones for us. Mike has been sick with a sore throat since Saturday. By Monday he really didn't feel well, but of course he tried to push as hard as ever in therapy. He developed a bit of a headache and of course we all worried. Our oncologist was called and immediately ordered a CT scan. The scan showed the beginnings of a little bleed due to the blood thinner Mike started taking because of the blood clot in his leg. (Did I mention before that Mike had developed a blood clot behind his left knee?) The blood thinner had to be stopped immediately. Today Mike was in the cardiac cath lab for about 2 hours getting a filter put into the main vessel in his torso... If the blood clot from his leg ever moves, it will be caught by the filter before it can go into his heart or lungs. Isn't modern medicine amazing? Mike slept for quite a while this afternoon as the drugs from the procedure wore off. He was up and ready for dinner this evening. We had to skip therapy today, but will be back at it tomorrow. We both feel as though we have a big test to pass before they will let Mike go home... Tomorrow, and Thursday will be our big "cram" days.

We are all so very tired from all that has happened in the last four weeks. I am sorry if I don't get all of you called back... Tonight I am going to sleep... NO MATTER WHAT!

Sunday

2009-09-13T20:58:00.003-04:00

Mike woke up not feeling very well today. He napped during the afternoon and felt much better this evening. I hope he sleeps well tonight.

There is a lot to do this week. Mike has to fine tune everything he has learned thus far so he can get around well at home. We can't wait for his homecoming on Saturday. He will work hard this week so it can all take place as scheduled. We look forward to continued out-patient therapy. Tonight as I rubbed lotion on his legs and feet, he felt it on his left side!!!

We are so grateful to a loving Heavenly Father who has guided us through yet another challenge. We aren't all the way through it, but we know we will be able to do it.

Thanks to the visitors today. Mike needed to see you. You buoyed him up so much!

Date night

2009-09-12T20:01:00.003-04:00

Mike had a good day... We sat outside for quite a while this afternoon. He has been cold inside the hospital so the warm sun felt good to him. Andy joined us for most of our outing.

I made dinner for Mike tonight. I even took a table cloth for us :) Mike has not complained about the hospital food at all, but I know salmon and asparagus tasted good to him tonight... We had a nice visit.

We reminded each other that this time next week we will be eating at our own dining table together!

This hospital stay has been long and tiring on both of us. But, we are about to start yet another challenge... that of Mike managing at home. I know he will accomplish a lot this week in therapy. He and his physical therapist are coming to our home on Wednesday to see how well things work. We are making adjustments to our bathroom to accomodate Mike more safely. I am anxious to see if we need to make any other changes.

Again, we are so grateful to have wonderful people who care for us, pray for us and support us in so many ways. Thanks to all of you we are making it!

9/11 update...

2009-09-11T20:48:00.002-04:00

Seems Mike and I were a bit reflective today. We enjoyed talking about Hannah's birth 26 yrs. ago. We are so grateful for her pure spirit. We rejoice with her today as she attends the temple in Albuquerque.

Mike and I also reflected upon Hannah's 18th birthday. Her friends all gathered for a party but instead we sat and watched the television to get all of the information we could about the terrorist attack. We will never forget the great sacrifices of so many in that single event.

Mike's therapy went well. We recognize that he has a few more "tricks" to learn before he feels secure enough to come home. I have never seen a man work harder or be more grateful for small steps.

Tomorrow night we decided that we would have a date night. I am going to fix one of Mike's favorite dinners and take it up to the hospital and we are going to dine together. I look forward to cooking and eating with Mike. Three weeks in the hospital thus far... another week to go!

Mike should be finished with therapy by noon tomorrow if anyone wants to visit. On Sunday he will have no therapy so the day is wide open. I am sure he would appreciate seeing friends...

Another little hurdle

2009-09-11T00:07:00.002-04:00

For the last few days I noticed that Mike's left ankle and foot werea bit swollen. I mentioned it to the many doctors who come to visit Mike. None seemed too concerned. Last night the medical oncologist came to visit and I mentioned it to him. He felt concerned enough to order a dopplar. It turns out Mike has a blood clot behind his left knee. He started on blood thinner today. The clot was found early enough that it is still soft and there is no occlusion. We count this as another tender mercy that I felt strongly about being persistent with something that I didn't feel was quite right.

Mike seemed discouraged today. He was so afraid with the clot he would have to stay down and lose all of his momentum... This is not the case. He had therapy today as usual. My prayer tonight is that tomorrow things will look brighter for Mike and he will continue to improve.

I guess it is after midnight here... so it is officially Hannah's birthday. We are so grateful for her and the bright spot she is in our lives. Her 3 week visit brought us out of a slump and we are so appreciative of that and everything else she does for us and others. Happy Birthday to Hannah...

another day, more progress

2009-09-09T22:32:00.002-04:00

Mike's progress continues. He is working amazingly hard and doing extremely well. We will have a home visit by the therapist to see what kinds of changes we will need to make in our home to make it more accommodating for Mike's safety. Luckily, Mike is pretty much an expert on making things handicap assessable. We don't have to worry about a wheel chair... Mike told the doctor today that he is WALKING OUT THE HOSPITAL DOOR and coming home with ONLY a cane. I am going to hold him to it...

more and more walking

2009-09-08T22:37:00.002-04:00

Mike is walking more and more. He is now able to walk to the bathroom (with assistance) for his shower in the evenings. He continues to work hard in therapy. Today he balanced himself on his own two feet for five minutes at a time. His left sided movements are starting to come naturally without him thinking and concentrating on evey move. He is definitely on the fast track out of there!

Tomorrow evening 4 of the rehab patients are going to go to Red Lobster for dinner. Mike was among those chosen. I will join him and his friends. It will be delightful for him to leave the hospital for a time. Those who were planning on visiting tomorrow evening will have to wait until another day.

I continue to be amazed at Mike's progress. Thinking back to a week ago when he could barely move is hard to even imagine now. These daily miracles are only happening because your faith and prayers. We will be forever grateful.

Labor Day

2009-09-07T23:07:00.002-04:00

Today was truly a day for Mike to labor...He started walking with a cane today! I went to his afternoon therapy session with him. I hadn't seen him walk for several days. He is doing marvelously! He still has quite a ways to go before his release date, but he is doing it. It is such hard work. It is great for us to see progress every day. Will and Maggie and their parents came for a visit today and it was so good for Mike to see them. We are so appreciative of family. Our children have been so solid throughout this ordeal. What fine adults they are!

Mike's brother, Rick, was taken off the ventilator today. He was able to speak and had no recollection of having a heart attack. We are so relieved that he is progressing so well. We believe in the power of prayer.

Tomorrow will be another day of labor...

Good Sunday news!

2009-09-06T16:45:00.003-04:00

Mike's surgeon popped in today for a visit. He has been at a conference for the past week. He was so encouraging... The pathology thus far indicates all of the biopsies were necrosis, rather than malignancy. We feel so blessed and feel we have received an answer to the many prayers that have been offered in our behalf. Thanks to all of you for your continued faith...

Mike's staples came out this afternoon. Tonight's shower will include his head :)